SIENNA proposals

The SIENNA project will develop ethical codes for human genomics, human enhancement, AI & robotics. We will also help improve existing ethical and legal frameworks for all three areas.

  • Synthesise expert and stakeholder views.
  • Improve guidelines for research ethics committees.
  • Make ethical assessments easier – in the biomedical field and beyond.
  • Facilitate exchange between research ethics committee members.
  • Enhance national, EU and international legal and ethical frameworks.
  • Produce SIENNA codes of conduct for researchers in human genomics, human enhancement and AI & robotics.

More information and contact


 

Lisa Tambornino, European Network of Research Ethics Committees

Lisa Tambornino, European Network of Research Ethics Committees

Lisa Tambornino studied philosophy, psychology and law at the University of Bonn. She obtained her PhD in philosophy in 2013. She has more than ten years of experience in working in interdisciplinary fields – in research, writing/editorial, project management and teaching. She was researcher and lecturer at the Jülich Research Centre and the German Reference Centre of Ethics in the Life Sciences. Currently, she is
research assistant at the EUREC Office. EUREC will lead the development of the SIENNA proposals and will contribute in many other ways to the projects access, e.g. by definig the approach for analysis and development of research ethics protocols and professional ethical codes and creating a survey of REC approaches and codes for human enhancement. EUREC represents RECs and associations of RECs in nearly all EU Member States. EUREC will work with the other partners and its own members to develop operational guidelines for research ethics for the three technologies.

Contact: tambornino[at]web.de

Dirk Lanzerath, leads SIENNA proposals work stream

Dirk Lanzerath, EUREC

Dirk Lanzerath is Secretary General of EUREC and Head of EUREC Office; Managing Director of the German Reference Centre (DRZE) of the University of Bonn; graduated in Biology and Philosophy; lecturer at the University of Bonn (Philosophy, Ethics, Bioethics), guest lecturer at Loyola Marymount University, Los Angeles, CA (Ethics). As Faculty member of The Bioethics Program (Advanced Certificate Program in Research Ethics: Central and Eastern Europe) of The Graduate College of Union University Schenectady, Schenectady, NY, and Mount Sinai School of Medicine, New York, NY (USA) he is very experienced in teaching research ethics in Central and Eastern European Countries. Research areas: ethics, bioethics, philosophy of science, philosophy of biology. Dirk Lanzerath is experienced in European networking processes and in coordinating large EC-Projects. He is coordinator of the ENERI project. Dirk Lanzerath leads the work stream developing proposals from the project.

Contact: lanzerath[at]eurecnet.org

Heidi C. Howard, Uppsala University

Heidi C. Howard, Uppsala University

Heidi C. Howard leads the ethical and legal analysis of  SIENNA's genomics work stream. She is currently a senior researcher at the Centre for Research Ethics & Bioethics (CRB) at Uppsala University. She received her undergraduate and doctoral degrees in Biology from McGill University (Montréal, Canada). She continued her genetics training in psychiatric genetics at the Centre for Genomic Regulation in Barcelona (Spain) and at the Douglas Hospital in Montréal (Canada). Heidi C. Howard is a recognized expert in the research field of ELSI of genetics/genomics, especially regarding the responsible translation of new technologies in genetics and genomics from the lab to the clinic.

Contact: heidi.howard[at]crb.uu.se

Emilia Niemiec, Uppsala University Centre for Research Ethics & Bioethics (CRB)

Emilia Niemiec, Uppsala University

Emilia Niemiec investigates ethical, legal and social implications of genomics in SIENNA project. She is a post-doc at Uppsala University's Centre for Research Ethics & Bioethics. During her PhD (Erasmus Plus PhD Programme in Law, Science and Technology) she studied ethical and legal issues of whole genome sequencing. She conducted the first empirical study of direct-to-consumer offer of whole genome sequencing. Emilia holds degrees in Bioethics (MSc, University of Leuven) and Biotechnology (MEng, Warsaw University of Life Sciences).

Contact: niemiec.emilia@gmail.com

Alexandra Soulier, Uppsala University

Alexandra Soulier, Uppsala University

Alexandra Soulier is a postdoc researcher at the Centre for Research Ethics and Bioethics (CRB) and contributes to the Human Genomics work flow in SIENNA.

Contact: alexandra.soulier[at]gmail.com

Saskia Nagel, University of Twente

Saskia Nagel, University of Twente

Saskia Nagel leads SIENNA's human enhancement work stream. She is full Professor of Applied Ethics at Aachen University (Germany) and Associate Professor in philosophy and ethics of technology at the University of Twente (The Netherlands). Her areas of expertise and research interests lie at the intersection of ethics, philosophy, the life sciences (in particular neuroscience and cognitive science), and technologies. She has led a research group studying the ethical, anthropological, and social implications of our growing knowledge about the brain’s plasticity. She co-authored the first position paper on pediatric enhancement, which was supported by several major US American physician associations.

Contact: s.k.nagel[at]utwente.nl

Sean Jensen, University of Twente

Sean Jensen, University of Twente

Sean Jensen is a Ph.D. candidate working on the Ethics of Human Enhancement in an International Context at the Philosophy Department of the University of Twente. He recently completed his MA in Bioethics at New York University, where he focused on the ethics of new & emerging technologies and worked with the Future of Life Institute on a research-based internship investigating biotechnology. Previously, he received a BA in English & Philosophy from Northern Illinois University and wrote a novel.

Contact: s.r.jensen[at]utwente.nl

Anaïs Resseguier

Anaïs Rességuier, Trilateral Research

Anaïs Rességuier is Research Analyst at Trilateral Research focussed on the ethics of new technologies. Her main research interests include the interface of the ethical inquiry and the social sciences and how societal challenges can be addressed; the socio-political implications of emerging technologies; and responsible research and innovation. She previously conducted research in the humanitarian sector and on the concept of care more generally. She has completed a PhD in Political Theory from Sciences Po Paris. She holds an MA in Philosophy from the Sorbonne University and a MSc in Forced Migration from the University of Oxford. 

Contact: anais.resseguier[at]trilateralresearch.com

Rowena Rodrigues, Trilateral Research (deputy coordinator)

Rowena Rodrigues, Trilateral Research (deputy coordinator)

Rowena Rodrigues, Research Manager, joined Trilateral Research in 2011. Her areas of expertise and research interests include: privacy and data protection (law, policy and practice), privacy certification, security and surveillance, comparative legal analysis, regulation of new technologies, ethics and governance of new and emerging technologies, and responsible research & innovation. She has published book chapters in Policy Press, Routledge, Springer and articles in journals such as the Computer Law & Security Review, European Journal of Social Science Research, International Data Privacy Law, International Review of Law, Computers and Technology and the Journal of Contemporary European Research. At Trilateral, she has contributed in various capacities to EU research projects (e.g., SATORI, PULSE, IRISS) and provides consultancy to the private sector. Rowena Rodrigues has a PhD in law from the University of Edinburgh. She leads SIENNA's work on methodological and theoretical foundations.

Contact: rowena.rodrigues[at]trilateralresearch.com

Philip Brey, University of Twente (coordinator)

Philip Brey, University of Twente (coordinator)

Philip Brey is full professor of philosophy and ethics of technology within the department of philosophy at the University of Twente, and its former chair. He is also scientific director of 4TU.Ethics, a research centre that comprises 60 researchers from four universities. He has published extensively in the areas of ethics of science and technology, social and political philosophy, and responsible research and innovation. Philip Brey currently leads the FP7 SATORI project that aims to develop a European framework for the ethical assessment of research and technological innovation. Philip Brey has an extensive publications record on human-machine interaction technologies and has also published on human enhancement and genetics. He leads the management work stream and SIENNA's work on AI & Robotics.

Contact: p.a.e.brey[at]utwente.nl

Zuzanna Warso

Zuzanna Warso, Helsinki Foundation for Human Rights

Zuzanna Warso is responsible for the legal and human rights research, and she is coordinating the work on generalizing the project’s results. Since 2011 she has been working as a lawyer at Helsinki Foundation for Human Rights. In her work she explores intersections of human rights and technology, with a particular focus on the issue of women’s rights. Zuzanna Warso passed the bar exam in April 2017. She is a member of the Women’s Rights Group by the Polish Bar Council. In 2017, she was been awarded the Marshall Memorial Fellowship by the German Marshall Fund of the United States.

Contact: zwarso[at]hfhr.org.pl