Stakeholders, experts and citizens in SIENNA
SIENNA depends on stakeholders, experts and citizens. We use a structured approach to identify and assess the ethical and socioeconomic issues, legal and human rights implications in human genomics, human enhancement, AI & Robotics. This includes a survey of public opinion.
Public opinion surveys & citizen panels
We have surveyed awareness, expectations and opinions regarding the three technology areas, using representative, large samples of citizens in seven EU and four non-EU countries (France, Germany, Greece, Netherlands, Poland, Spain, Sweden, Brazil, South Korea, South Africa, and United States). The results of the survey will shape the ethical evaluation and the development of ethics protocols and codes.
We have also set up panels of citizens in five EU countries (France, Germany, Spain, Poland and Greece), and will have a full-day deliberation with them on the three technologies, including their impacts, their relevant ethical and legal issues, and the ethical codes needed to regulate them. The results will be incorporated into our proposal for ethical frameworks.
Expert and stakeholder consultation
Throughout the project, SIENNA will consult with expert stakeholders (scientists, social scientists, engineers, ethicists) to learn about the technologies, their future evolution and impacts and their ethical dimensions. We will perform at least 120 semi-structured interviews via video, telephone or face-to-face. Another another 80+ interviews with other stakeholders (CSOs, policy makers, industry and professional organisations in research & innovation) will also take place.
We will organize 26 workshops and conferences with stakeholders, including scientists, ethicists, research ethics committees, professional organisations, civil society organisations, industry and policy-makers.
Human Genetics & Genomics
Technologies to sequence or edit DNA can become powerful tools to diagnose and treat diseases, yet they also raise important ethical, legal and social issues.
Technology can enhance our physical, cognitive, emotional and moral abilities. Challenging the boundaries between health and illness, treatment and enhancement, normality and abnormality.
Artificial Intelligence & Robotics
We interact with robots, smart devices, intelligent software, prosthetics and implants. We can benefit enormously from interacting with machines. But there are significant ethical challenges.