News from the SIENNA project
Interested in the ELSI of Human Genomics? Connect to find out what we do!
New and improved technologies for genetic and genomic research are slowly making their way from research to patients and consumers. This raises ethical, legal and social questions for both individuals and society. Today, the SIENNA project sent our first update to stakeholders in Human Genomics. Not on our list? Sign up to find out what we do!
Human Enhancement: legal analysis complete!
SIENNA partners have completed their research on legal developments and human rights challenges related to human enhancement technologies. We have covered the legal developments on the international level and in the EU, and completed 12 country studies of the national level, looking at the relevant laws and human rights standards.
The right to science and human germline editing
In a recently published article titled “The right to science and human germline editing. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act”, Santa Slokenberga and Heidi Carmen Howard argue this right to science should also include protection against scientific advancements with destructive implications for humans, their rights and humanity.
Don't forget to register for the SIENNA-SHERPA-PANELFIT webinar on May 20!
On Monday 20 May, 2019, three Horizon 2020 projects working with the ethical, legal and human rights aspects of different IT-technologies present in a joint webinar. Find out how we will contirbute to responsible AI, big data and data sharing.
Into AI & robotics? Connect to find out what we do!
More and more people are interacting with robots, smart devices, intelligent software, prosthetics and implants. They are used in industry, the education system, health care, our homes, the entertainment industry and military applications. The potential benefits are abundant. However, there are considerable ethical and legal challenges. Today, the SIENNA project sent our first update to stakeholders in AI and robotics. Not on our list? Sign up to find out what we do!
Legal analysis of genetics and genomics complete!
The SIENNA project completed our research on the legal developments, issues and human rights challenges for human genetics and genomics. We have covered the legal developments in different international legal orders (UN, ASEAN, AU, CoE and OAS) and in the EU, and completed studies in 12 countries, where we have looked at relevant laws and human rights standards on the national level.
Public opinion surveys and panels complete!
Besides input from experts, the SIENNA project is committed to include public opinion in our work. The results will inform the ethical evaluation and the development of ethics protocols and codes. On 27 April 2019, we ended our data collection. In all, we have completed telephone surveys with over 11,000 people in 11 countries and citizen panels in 5 countries. Now, the work to analyse the data begins.
Law, AI and robotics: Legal analysis complete!
SIENNA partners have completed their research on legal developments, issues and human rights challenges related to artificial intelligence (AI) and robotics. We have covered the legal developments on the international level and in the EU, and completed 12 country studies of the national level, looking at the relevant laws and human rights standards.
Free on May 20? Find out more about SIENNA, SHERPA and PANELFIT!
On May 20, 10 AM CET, the SIENNA, PANELFIT and SHERPA projects will explain what we do, where the overlaps are, and how we intend to work together to improve ethical, human rights and legal frameworks for artificial intelligence, big data, smart information systems, and ICT in general.
Stakeholder and expert input to SIENNA's ethical analysis
Today and tomorrow, SIENNA consortium members meet experts and stakeholders in Athens to discuss the project's approach to ethical analysis. Participants will discuss methods and approaches to integrate stakeholder perspectives and public opinion in ethical assessments of new technologies.
Harnessing existing human rights jurisprudence to guide AI
You don’t have to look too hard to become acutely aware of the potential dangerous effects of the development and use of algorithms and AI. It is already common knowledge that in the wrong or reckless hands these technologies may sway elections, lead to discrimination, and inhibit freedom of speech or access to information. It is then trite to say that algorithms and AI can pose serious challenges to individuals and the protection of their human rights.
Applications, benefits and concerns of human enhancement
Human enhancement is no longer science fiction. Developments in biomedicine and neuroscience demands practical discussion about its ethical, legal, and social implications. SIENNA uses a structured approach to examine the challenges to society. Check out our new infographic to find out more about the applications, benefits and concerns related to human enhancement technologies!
Applications, benefits and concerns of human genomics
Today, DNA can be “read” much faster and cheaper than just a decade ago. Genetic testing can reveal information about the health of adults, children, and foetuses. At the same time, another new technology for gene editing has become available: CRISPR/Cas9, that allows for modification of DNA in humans. Check out our new infographic to find out more about the applications, benefits and concerns related to human genetics and genomics!
Human genomics: New project video!
Genome' is a word for all our DNA. DNA information can tell us about our health. It can help us diagnose a disease, help prevent future ones, and tell us about the health of our relatives. Scientists study our DNA, and have tools that can modify it. Want to know more? Check out our new video clip!
Recap of Human Genomics foresight workshop
On 18 January, the SIENNA project arranged a foresight workshop on human genetics and genomics. Stakeholders and experts spent the day discussing the future ethical and impacts. A short report is coming, but for anyone interested, a recap of the event is available on Twitter.
Recap of Human Enhancement foresight workshop
On 16-17 January, the SIENNA project arranged a foresight workshop on human enhancement. Stakeholders and experts spent one and a half days discussing the future ethical and impacts. A short report is coming, but for anyone interested, a recap of the event is available on Twitter.
Call for papers: Ethics and Human Rights in Smart Information Systems
Interested in the ethics and human rights issues in smart information systems? Join the SHERPA, SIENNA. PANELFIT, ORBIT projects and others in the IEEE Smart World Conference forum thisyear! Call for papers closing 26 April 2019.
Recap of AI & Robotics foresight workshop
On 15-16 January, the SIENNA project arranged a foresight workshop on artificial intelligence and robotics. Stakeholders and experts spent one and a half days discussing the future ethical and impacts. A short report is coming, but for anyone interested, a recap of the event is available on Twitter.
Tell us what you think are the important future technologies in human genomics!
We want to know what you think are the most important upcoming technological developments in the field of human genetics and genomics? The technologies can be in any stage of development: as ideas, under development or in an initial stage of implementation. Answer our survey by Thursday 17 January!
Season's greetings from SIENNA
Happy holidays from the SIENNA consortium partners in the Netherlands, China, Germany, Brazil, Poland, Greece, United Kingdom, France, Spain and Sweden, and our associate partners in Japan and the US.
Stakeholder input to SIENNA: Foresight
In January 2019, SIENNA is organising three foresight workshops to discuss risks, impacts and ethical issues of AI and robotics, human enhancement and genomics with invited stakeholders.
Embedded EthiCS postdoc opportunity at Harvard University
Want to help bring ethical reasoning into the computer science curriculum? Don't miss the embedded EthiCS postdoc opportunity at Harvard University! Apply by January 15.
Looking for AI expertise!
Are you an expert in artificial intelligence? The SIENNA project is looking for AI experts to interview for our foresight work. What do you believe is on the horizon?
AI & Robotics: New project video
We interact with machines, robots, smart devices, intelligent software, prosthetics & implants. Robots can perform human tasks on their own, and smart devices can operate autonomously. Or connect & work together. Watch our new YouTube video to find out how SIENNA will approach these issues!
Collecting stakeholder input on legal aspects of Genomics, Human Enhancement, AI & Robotics
On November 8-9, the Helsinki Foundation for Human Rights is hosting the second SIENNA stakeholder workshop. This time covering the legal aspects of genomics, human enhancement, AI & Robotics.
Law Disrupted, Law Re-Imagined, Law Re-Invented
SPEAKER: Roger Brownsword
Warsaw University, Lipowa 4 St.
Human Enhancement: Issues for SIENNA
We can use technology to enhance different abilities: physical, emotional, cognitive, and moral. This challenges boundaries between treatment and enhancement, health and illness. Does this question human nature? Should some things remain unchanged? Or is it human to enhance? Watch our new video to find out more!
SIENNA infographic on AI and robotics
Artificial intelligence and robotics will significantly impact society, values and human rights. What will change for the better, and what will change for the worse? Which values could change and who will be most affected? SIENNA's new infographic on AI and robotics tells us what to expect.
SIENNA - soon in your langauge!
The SIENNA project has partners from Europe, Asia, Africa and the Americas. Right now, we are working to make information about the project available in different languages to help partners communicate about our work.
The SIENNA project in Spanish
Speak Spanish? SIENNA has developed a video about the project for Spanish audiences. Follow the SIENNA Technology, ethics and human rights channel on YouTube for more videos!
Fostering cooperation and finding synergies
SIENNA's Coordinator Philip Brey and Deputy Coordinator Rowena Rodrigues represented the SIENNA project at the European Cluster Event on ‘Research Ethics and Research Integrity Projects’, organised by the European Commission in Brussels on 1 June 2018.
SIENNA underscores major issues of big data and AI at SHERPA workshop
On 3 May 2018, the EU-funded H2020 SHERPA project organised a workshop on “AI and Big Data: Ethical and Human Rights implications” at the Press Club Brussels Europe. At the meeting, SIENNA’s coordinator Philip Brey shared insights from our ongoing research on big data and artificial intelligence.
Brazilian perspectives on ethics and new technology
In December 2017, the quarterly magazine Rio Pesquisa invited two Brazilian SIENNA researchers to talk about their participation in the project. Here, Marcelo de Araujo, Professor of Philosophy of Law at the Federal University of Rio de Janeiro, gives a short English summary.
Let us know what you think about Human Enhancement
What kind of impact will new technologies have on our lives? Will technolgy replace us, or give us new opportunities? Please help SIENNA by completing a survey about socio-economic impacts of human enhancement technologies. Let us know what you think by February 12!
AI ethics, foresight and ethics by design: Digital Ethics Summit
The Digital Ethics Summit held earlier this month focussed on AI ethics, foresight and ethics by design. The messages coming out of the summit are highly relevant for SIENNA. Here, SIENNA deputy coordinator Rowena Rodrigues gives an overview of the discussions.
SIENNA at Brave New World conference
How far do we want to go with human enhancement? Does Artificial Intelligence have rights? What is the future of democracy in this digital age? What do we think of helping nature with artificial evolution? These are some of the questions asked at the Brave New World conference, where SIENNA coordinator Philip Brey addressed the ethics of new technology.
ETHICS BLOG: Ethics, human rights and responsible innovation
It is difficult to predict the consequences of developing and using new technologies. We interact with smart devices and intelligent software on an almost daily basis. Some of us use prosthetics and implants to go about our business and most of us will likely live to see self-driving cars.
SIENNA: Preparing the ground for responsible innovation
Policy makers all over the world struggle to assess the ethical and human rights impact of new research in genetics and genomics, human enhancement, artificial intelligence and robotics. Researchers from four continents have teamed up in the SIENNA project to help improve existing ethical and legal frameworks. The project receives a financial contribution of just under €4 million from the EU’s Horizon 2020 programme.
SIENNA project kicks off
On October 19-20 this year, the SIENNA project kicks off with a meeting at the University of Twente. Researchers from Europe, Asia, America and Africa come together to discuss the ethical, legal and human rights aspects of Human Enhancement, Human Genomics, AI & Robotics.
European funding for research on ethical and legal aspects of new technologies
In the upcoming decades, technology will change the world. One of the most important questions in this connection is, just how far do we want to go? Over the next three-and-a-half years, University of Twente researchers, together with counterparts from around the world, will be tackling that very question.
Human Genetics & Genomics
Technologies to sequence or edit DNA can become powerful tools to diagnose and treat diseases, yet they also raise important ethical, legal and social issues.
Technology can enhance our physical, cognitive, emotional and moral abilities. Challenging the boundaries between health and illness, treatment and enhancement, normality and abnormality.
Artificial Intelligence & Robotics
We interact with robots, smart devices, intelligent software, prosthetics and implants. We can benefit enormously from interacting with machines. But there are significant ethical challenges.