SIENNA proposals

The SIENNA project will develop ethical codes for human genomics, human enhancement, AI & robotics. We will also help improve existing ethical and legal frameworks for all three areas.

  • Synthesise expert and stakeholder views.
  • Improve guidelines for research ethics committees.
  • Make ethical assessments easier – in the biomedical field and beyond.
  • Facilitate exchange between research ethics committee members.
  • Enhance national, EU and international legal and ethical frameworks.
  • Produce SIENNA codes of conduct for researchers in human genomics, human enhancement and AI & robotics.

More information and contact


 

Lisa Tambornino, European Network of Research Ethics Committees

Lisa Tambornino, European Network of Research Ethics Committees

Lisa Tambornino leads SIENNA's work to develop proposals. She studied philosophy, psychology and law at the University of Bonn. She obtained her PhD in philosophy in 2013. She has more than ten years of experience in working in interdisciplinary fields – in research, writing/editorial, project management and teaching. She was researcher and lecturer at the Jülich Research Centre and the German Reference Centre of Ethics in the Life Sciences. Currently, she is
research assistant at the EUREC Office. EUREC will contribute in many other ways to the projects access, e.g. by definig the approach for analysis and development of research ethics protocols and professional ethical codes and creating a survey of REC approaches and codes for human enhancement. EUREC represents RECs and associations of RECs in nearly all EU Member States. EUREC will work with the other partners and its own members to develop operational guidelines for research ethics for the three technologies.

Contact: tambornino[at]web.de

Dirk Lanzerath, EUREC

Dirk Lanzerath, leads SIENNA proposals work stream

Dirk Lanzerath is Secretary General of EUREC and Head of EUREC Office; Managing Director of the German Reference Centre (DRZE) of the University of Bonn; graduated in Biology and Philosophy; lecturer at the University of Bonn (Philosophy, Ethics, Bioethics), guest lecturer at Loyola Marymount University, Los Angeles, CA (Ethics). As Faculty member of The Bioethics Program (Advanced Certificate Program in Research Ethics: Central and Eastern Europe) of The Graduate College of Union University Schenectady, Schenectady, NY, and Mount Sinai School of Medicine, New York, NY (USA) he is very experienced in teaching research ethics in Central and Eastern European Countries. Research areas: ethics, bioethics, philosophy of science, philosophy of biology. Dirk Lanzerath is experienced in European networking processes and in coordinating large EC-Projects. He is coordinator of the ENERI project. Dirk Lanzerath leads the work stream developing proposals from the project.

Contact: lanzerath[at]eurecnet.org

Uppsala University

Mats Hansson

Mats Hansson, Uppsala University

Mats Hansson is leading SIENNA's Human Genomics work stream. He is Senior Professor of Biomedical Ethics at Uppsala University and has conducted extensive research in biomedical ethics as principal investigator in several multi-disciplinary research projects dealing with issues ranging from ethical, social and legal aspects of the implementation of genetic diagnosis in clinical practice and the use of human tissue materials in research, to clinical and medical ethics.

Contact: mats.hansson[at]crb.uu.se

University of Twente

Philip Brey, University of Twente (coordinator)

Philip Brey, University of Twente (coordinator)

Philip Brey is full professor of philosophy and ethics of technology within the department of philosophy at the University of Twente, and its former chair. He is also scientific director of 4TU.Ethics, a research centre that comprises 60 researchers from four universities. He has published extensively in the areas of ethics of science and technology, social and political philosophy, and responsible research and innovation. Philip Brey currently leads the FP7 SATORI project that aims to develop a European framework for the ethical assessment of research and technological innovation. Philip Brey has an extensive publications record on human-machine interaction technologies and has also published on human enhancement and genetics. He leads the management work stream and SIENNA's work on AI & Robotics.

Contact: p.a.e.brey[at]utwente.nl

Saskia Nagel, University of Twente

Saskia Nagel, University of Twente

Saskia Nagel leads SIENNA's human enhancement work stream. She is full Professor of Applied Ethics at Aachen University (Germany). Her areas of expertise and research interests lie at the intersection of ethics, philosophy, the life sciences (in particular neuroscience and cognitive science), and technologies. She has led a research group studying the ethical, anthropological, and social implications of our growing knowledge about the brain’s plasticity. She co-authored the first position paper on pediatric enhancement, which was supported by several major US American physician associations.

Contact: s.k.nagel[at]utwente.nl

Sean Jensen, University of Twente

Sean Jensen, University of Twente

Sean Jensen is a Ph.D. candidate working on the Ethics of Human Enhancement in an International Context at the Philosophy Department of the University of Twente. He recently completed his MA in Bioethics at New York University, where he focused on the ethics of new & emerging technologies and worked with the Future of Life Institute on a research-based internship investigating biotechnology. Previously, he received a BA in English & Philosophy from Northern Illinois University and wrote a novel.

Contact: s.r.jensen[at]utwente.nl

Philip Jansen, University of Twente

Philip Jansen, University of Twente

Philip Jansen is a PhD candidate at the Philosophy Department of the University of Twente, specialising in the ethics of artificial intelligence. In addition, he is an ethics advisor for the University of Twente’s F​aculty of Electrical Engineering, Mathematics and Computer Science​. Philip was a research associate in the EU-funded SATORI project (2013–2017, http://satoriproject.eu) and has (co-)authored a number of professional and academic publications on ethics assessment of research and innovation. He holds a master’s degree in philosophy and ethics of technology from the University of Twente (cum laude), and has written an award-winning master’s thesis on the ethics of surveillance by unmanned aerial vehicles (drones) in civil contexts.

Contact: p.h.jansen[at]utwente.nl

Trilateral Research

Anaïs Rességuier, Trilateral Research

Anaïs Resseguier

Anaïs Rességuier is Research Analyst at Trilateral Research focussed on the ethics of new technologies. Her main research interests include the interface of the ethical inquiry and the social sciences and how societal challenges can be addressed; the socio-political implications of emerging technologies; and responsible research and innovation. She previously conducted research in the humanitarian sector and on the concept of care more generally. She has completed a PhD in Political Theory from Sciences Po Paris. She holds an MA in Philosophy from the Sorbonne University and a MSc in Forced Migration from the University of Oxford. 

Contact: anais.resseguier[at]trilateralresearch.com

Rowena Rodrigues, Trilateral Research (deputy coordinator)

Rowena Rodrigues, Trilateral Research (deputy coordinator)

Rowena Rodrigues is Senior Research Manager at Trilateral Research. Her areas of expertise include regulation of new and emerging technologies, comparative legal analysis, ethics of new and emerging technologies, privacy and data protection (law, policy and practice), certification, security and surveillance, ethical impact assessment, and responsible research & innovation. She has contributed/contributes in various capacities to European research projects, e.g., SHERPA, TITANIUM, SATORI, IRISS, PULSE, EU privacy seals. She has published book chapters in Policy Press, Routledge, Springer and articles in journals such as the Computer Law & Security Review, European Journal of Social Science Research, International Data Privacy Law, International Review of Law, Computers and Technology and the Journal of Contemporary European Research. At Trilateral, she has contributed in various capacities to EU research projects (e.g., SATORI, PULSE, IRISS) and provides consultancy to the private sector. Rowena leads SIENNA's work on methodological and theoretical foundations

Contact: rowena.rodrigues[at]trilateralresearch.com

David Wright, Trilateral research

David Wright, Trilateral research

David Wright is Director of Trilateral Research, a London-based research company, which he founded in 2004. He has been a partner in numerous projects funded by the European Commission involving privacy, surveillance, risk, security and ethics. He has published many articles on privacy impact assessment in peer-reviewed journals. He wrote the first articles on ethical impact assessment and surveillance impact assessment. Springer published his most recent book, Enforcing Privacy, co-edited with Paul De Hert, in April 2016. His previous books were Surveillance in Europe (Routledge, 2015) and Privacy Impact Assessment (Springer, 2012). The latter was the first such book on PIA.

Contact: david.wright[at]trilateralresearch.com

Helsinki Foundation for Human Rights

Zuzanna Warso, Helsinki Foundation for Human Rights

Zuzanna Warso

Zuzanna Warso constirbutes to SIENNA's work on generalizing the project’s results. Since 2011 she has been working as a lawyer at Helsinki Foundation for Human Rights. In her work she explores intersections of human rights and technology, with a particular focus on the issue of women’s rights. Zuzanna Warso passed the bar exam in April 2017. She is a member of the Women’s Rights Group by the Polish Bar Council. In 2017, she was been awarded the Marshall Memorial Fellowship by the German Marshall Fund of the United States.

Contact: zwarso[at]hfhr.org.pl

Konrad Siemaszko

Konrad Siemaszko is responsible for the legal and human rights research in SIENNA and is coordinating the work on generalizing the project’s results. He holds degrees in law and sociology from Warsaw University. Since 2016 he has been working for the Helsinki Foundation for Human Rights, where he has been involved in both litigation and research projects. His work focuses on the impact of new technologies on human rights and freedom of expression (both online and offline).

Contact: konrad.siemaszko[at]hfhr.pl

Sciences Po

Robert Gianni, Sciences PO

Robert Gianni, Sciences PO

Dr Robert Gianni is a political and social philosopher working at Maastricht University and Ethics Expert for the European Commission and Eureka Eurostars. He has been working on the relation between science and society with a particular focus on their regulations and their intersections. The current aim of his research is to critically scrutinize the different registers of justification of technological innovation and their repercussions for democratic systems. Some of his latest works include: Gianni R., (2019), ‘Chosing Freedom: ethical governance for responsible research and innovation’, in von Schomberg R. ,Hankins J., International Handbook on Responsible Research and Innovation, Edward Elgar, Cheltenham, & Gianni R., Pearson J., Reber B., (eds.) (2018), Responsible Research and Innovation. From Concepts to Practices, Routledge, Oxford.

Contact: r.gianni[at]maastrichtuniversity.nl